As a new blogger, I sometimes wrestle with what the blog should be. Primarily this a blog dedicated to supervisory management development topics. Occasionally I will post other things you may be interested in. I share today's post with you because it had a profound impact on me.
I recently received a letter from Renee Holder who I've known for about six months. She is a bright person, smiling and friendly. I read her letter several times. It touched me deeply. I never knew the challenges she faces daily. I asked if I could share her letter with you. Here it is, reprinted with permission.
Dear Friends and Family,
Growing up, I had been told that my aunt had MS, but I didn’t really know what that meant. I knew she had trouble grasping things with her hands. After my aunt moved out of state, Mom reported that her illness had progressed and that she now had trouble walking, but it was difficult for me to really imagine her symptoms.
I grew up, went to school, served my country, got married, had children. I would think from time to time that I should participate in an MS walk or fundraiser, but I never seemed to find the time. I got divorced, got a full time job, and discovered two of my co-workers had MS. I again thought I should do something to “support MS”, but life always seemed to be too hectic. I was newly remarried, and with four boys, there were baseball games to shuttle them off to, birthday cakes to bake, play dates to set up, tag sales to throw, and knees to bandage. My cousin was diagnosed with MS around this time, and although I thought of her often, I wasn’t in touch with her as much as I would have liked because we both had our lives going on.
In September of 2008, the palms of my hands and the heels of my feet started to go numb. It had happened in the past, but never this long or this severely, and I’d always dismissed it as a vitamin deficiency or some such thing, and eventually the numbness would subside. This time was different the numbness spread, traveling up my torso until it felt like I was wearing a corset two sizes too small. Within a week, I had difficulty walking, and holding anything in my hands was out of the question. In my heart, I knew what I was facing, and within 16 days of the onset of my symptoms, the doctor confirmed what I’d already suspected: I was diagnosed with Multiple Sclerosis.
Steroid treatments have given me back my feet, but my hands are still affected. Heat causes me pain, and eating popcorn is misery the texture makes the nerve endings in my fingertips explode in agony. It hurts to wash my hair, and I have trouble putting on makeup or typing on a keyboard. I have “fat” pencils and on the days that I can’t even grasp those, I poke them through a Styrofoam ball in order to be able to write. I can no longer “high-five” my sons, nor can I clap at their games. I have lost the ability to paint ceramics my favorite hobby, but this craft is lost to me now that I can no longer hold a paintbrush. My husband John has to give me my weekly shot, hoping that maybe this week, I will be able to hold his hand without flinching in pain.
My diagnosis has brought me closer to my cousin, and we now talk regularly about treatments, therapies, and remedies. And I started thinking again, I should do something. I should walk, for my aunt and my cousin. For my co-workers with MS, who have offered me support and advice and an ear while I struggled with my diagnosis. And for myself. I know all too well how quickly the symptoms can flare up, and I want to walk, because I don’t know if I will be able to feel my toes tomorrow.
I ask for your support as I walk with in the National MS Society Rhode Island Chapter’s 20th annual MS Walk. I am excited to be part of an event that involves hundreds of walkers at locations throughout Rhode Island. I’ll be walking in Narragansett on Sunday, April 19th and I am asking for your help.
The National Multiple Sclerosis Society is dedicated to ending the devastating effects of MS. It simultaneously funds research for a cure while helping people with MS lead more fulfilling lives. I believe in the work the Society does both in my community and nationwide. More than 400,000 Americans live with MS, and your help can and will make a positive change in their lives.
Please help by making a donation - large or small - to fight MS. Or, why not join me the day of the event? By participating and side-by-side, we can make a difference.
Your support is crucial and I greatly appreciate it. You can support me by making a secure donation to my fundraising efforts by visiting www.mswalkri.com and searching for my name, or you can send a donation to the National MS Society RI Chapter at 205 Hallene Rd., Suite 208 Warwick, RI 02886. Please make sure to include Walk MS and my name on your check please! Thanks!
Renee Holder
Dan's note: Renee Holder is taking my supervision programs with other managers of her company in Norwich, CT. You can
click this link to go directly to her page at www.mswalkri.com.