My March 21, 2009 post concerned a letter I received from Renee Holder that touched me deeply. Renee has Multiple Sclerosis and her letter talked about the challenges she faces daily. You may want to
click here to read that post first.
A few weeks ago I received an update from Renee and reprint here with permission.
Dear Friends and Family,
Thank you so much for supporting my recent Walk MS 2009. This was my first year participating in the event, and I was nervous about putting a team together, asking for donations, and even finding parking to walk that day! The event turned out to be a resounding success, and I want to thank you for being a part of this achievement.
April 19, 2009, wound up being a brisk, sunny day at the South Pier School in Narragansett. Our team, Walkin' Myelin & Myel-Out, arrived in matching team t-shirts embroidered by Haberek's Embroidery, and we were able to congregate in the cafeteria for snacks and coffee before the walk began. Here, we were able to chat with other teams and participants, some with MS, to exchange stories and learn pointers about how to survive the walk!
Our team, consisting of 23 people, wound up separating during the walk due simply to size (I remember panicking when I signed up for this event, wondering how I would find the minimum number of five people to join my team! I have the greatest family and friends in the world!) Our location offered two walks - one three miles long, the other six. We had planned on walking three miles, but some of us turned left instead of right at a critical juncture, putting them on the six mile hike. I am sorry to say that some of the six mile walkers actually beat my three mile group to the finish line, but heck, I have an excuse - I have MS!
After the walk, our team congregated back at my house for some good food and good conversation. Next year, I plan to have a picnic at the school after the walk to give us the opportunity to spend more time with our fellow walkers and enjoy the sunshine a little longer.
As a team, we had 119 donations totaling over $3870.00. At the beginning of this challenge, I was afraid that setting $500.00 as our team goal was too high - I can't begin to tell you how much it touched me to see the donations and volunteers pile up!
For those who took time from your busy lives to walk with me, thank you. For those of you who asked friends and family for donations, thank you. For those of you who want to walk next year, let me know! I will contact you earlier in the planning stages of the walk. To everyone who has been so supportive, I ask that you keep me and MS in mind as worthy cause to donate to again next year. If you have any fund raising ideas, please let me know.
I also wanted to share with you how I personally am doing on my journey with MS. When I first sent out a letter telling my friends and family about the MS Walk, I was newly diagnosed and not sure what the future held. My doctor had a "wait and see" attitude about my symptoms and flare-ups, and it took some time to convince him of the extreme pain I was in. He has put me on a regimen of pain medication for my hands, feet, and torso, a drug I take in the morning to keep me more alert and able to function during the day, and a steroid treatment approximately every two months to knock my symptoms back in line when they get worse. Although I am never completely pain-free, these drugs have helped me to lead as normal a life as possible - and give me hope that a cure is out there, waiting to be found.
For those of you who are interested, go to
www.mswalkri.com and click on the link to view pictures from the day of the walk.
Thank you again for your love and support. I couldn't have done it without each and every one of you!
Renee
Dan's note: Renee Holder is scheduled to receive our Certificate in Supervisory Management along with other managers from her company on June 24 in Norwich, CT. To learn more about our programs for supervisors, click her to visit
www.danpelley.com